No improvement in weakness, home coming delayed

Kay is still not eating very much and remains very weak. She's been moving around a little today and has been outside for a breath of fresh air. However, whilst in terms of cell counts and treatment there's no reason for Kay to stay in hospital, the doctors are concerned to stabilize her weight loss and nutrition before letting her go home. We hope that this will be tomorrow evening, but we'll have to see day-by-day.

In herself Kay is doing very well. She had a quiet word with one of the nurses today, who then took Marion & I on one side and told us that Kay had asked her to interceed on her behalf: we were bothering Kay too much with our concerns about her lack of appetite and the need to eat. So we have learned our lesson and backed off on the subject. I said that Kay was dealing with all this better than Marion or I!

Kay had a bunch of questions about the treatment, schooling, hair loss, etc, that she wanted to put to some of the other patients of her age. The hospital has a team that facilitate this using video. Kay has written her questions down with the help of one of the team members and I gather that the video team will then use these questions to interview some other girls on the ward. They will then make a DVD of the interviews and give it to Kay. This keeps a layer of privacy and discretion (and isolation), but also helps these kids out. Cool, or what? I tell you, this is a brilliant place.