A short update: it turned out that Kay also had a virus as well as a bacterial infection. The virus was the reason that she needed the oxygen. However she improved well enough so that she got a weekend pass to go home on Saturday. So we had a quiet family weekend recovering from the dramas of the previous weeks. Now she's back in Nijmegen on the chemo. The expectation is that if all goes well she will be home again on Wednesday. After that we have no idea what to expect. Marion & I have an appointment on Wednesday to hear what the plans are for her continued care after this week.
We heard today that five potential donors have been identified during the initial search. These donors will now be contacted to provide blood for a more detailed type match, a process that will most likely take many weeks yet.
Kay remains positive, difficult and damned tough. She's generally happy, if fed up of being tired and having no energy. She's also complaining that her legs hurt due to lack of use, but she continues to push herself along. On Saturday she cycled 1.5km on Uncle James' VR cycle simulator. (On Sunday I did 20km on it and it left me with rubber legs!).
I'll have to publish a list of the best gadgets for long stay hospital patients/parents. Contenders for the top place are the Slingbox and the Amazon Kindle. WebChair for linking to school is excellent. The TACX iMagic cycle simulator also ranks highly, though for home use only. A laptop with mobile internet and Skype/Windows Live is essential. The iPhone / iPod Touch is unmissable especially with the addition of Logitech portable speakers. Kay has also discovered that the department has a Wii - I expect that when she's in here for a while she'll be driving everyone mad with her Guitar Hero game! I'll have to write to the Gadget Show...
Can you imagine how much stuff we're dragging around?
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