An Amazing Child

Wednesday Morning:

Starts with high dose Methatrexate repeated 4 times during the day, plus Kepra, etc. Followed by a trip to Nijmegen for a series of preparatory medical tests and meetings. This includes a meeting with the Radiologist, who attempts to explain to Kay what Total Body Radiation is and what effects it will have. Kay doesn't want to hear so puts her iPod headset on and blanks the rest of us out. Later the Radiologist wants to show her to radiotherapy treatment room and the chair she will have to sit in. Kay doesn't want to know and is absolutely adamant that she will not go in, not look, not sit in the chair. Everyone but Daddy doesn't understand this and keeps trying to pursuade her otherwise, which brings anger and tears. But Daddy understands - he wouldn't want to go in there either, it would give substance to the nightmares and fuel the fears in the coming weeks. So Daddy extracts a promise from her that when the time comes she will cooperate fully. That's OK.

Wednesday Afternoon:

Starts with 60 minutes horse riding, including galloping. A couple of hours break to eat and then hockey practice. That's another 75 minutes in the cold and dark running round a hockey pitch.

Thursday:

Insists on cycling to school, full day at school. Kepra morning & evening, 6MP chemo in the evening.

Friday:

Has to take anti-MTX medicine. Also Kepra and 6MP. Again, insists on cycling to school. Is extremely tired in the evening.

Saturday Morning:

Kepra. Takes part in an (away) hockey match with her team in the pouring rain. Spends the first half goalkeeping. In the second half takes her usual attacking position and scores five goals. Her team wins.

Saturday Afternoon:

Spends two hours playing tennis with a friend. Followed by Kepra and 6MP.

Sunday Morning:

Is up at 8am and downstairs on the computer working on a project for school about Leukemia and Blood.

Is pestering us to go to SnowWorld so that she can do some skiing.

Nevermind comic books, superheros exist in real life.