Kay was operated on in the late morning. She spent around 90 minutes in the operating theatre whilst a new and larger line was placed in her body. The surgeon decided to remove her original portal as well. A bone marrow sample was taken for another MRD measurement - a surprise to us - and she was given a spinal chemo. She recovered fairly fast and eventually was allowed home on Friday evening instead of Saturday morning. When she got home I have to say that she was in pretty good (mental) shape and has remained so all weekend. The child is so strong and adapts to new circumstances so quickly, I continue to be amazed.
She spent Saturday morning lounging in our bed watching TV, which is a) usually not allowed in our house and b) completely abnormal for Kay. But by lunchtime she was up and around, albeit holding her left arm in a defensive position. By Sunday she was largely back to normal, awake early and active, using her left arm carefully. On Sunday afternoon the results of the spring junior tennis competition were announced and Kay was confirmed as the winner of her pool.
This is such a rollercoaster ride.
Kay wins her tennis competition
Dear all,
ReplyDeletea rollercoaster indeed! All the different and opposite moments of fear, joy, laughter, tears, pain, hope and doubt.... you are going through everything a human being is capable off bearing. Kay's behaviour reminds me very strongly about my son! Children adapt so easily that it frightens us. Often THEY give us the strength to move on.
Reading that you have doubts about the diagnosis whilst seeing Kay so strong feels like going back in time. But I am sure you talk about your doubts with the specialists.
Sometimes it is good not to know what is going to happen. This way you cannot worry to much and save your energy for times it will be more needed. It is a difficult and fearful time. We will think of you, support and where or however needed help in our own way! Do not hesitate to ask.
A big hug for Kay and that you may find the strength needed,
Viviane
Dearest Kay,
ReplyDeleteHaving got to grips with the arrival of our second baby boy, Quinn, I have just been catching up with your news on your blog. The photos of you playing hockey and tennis are fantastic - I was so impressed! You inspired me to get my running shoes on again and dust off my bike!
Last week sounded really hellish for you, but as ever you handled it all so bravely. We are thinking of you in the coming couple of weeks with the bone marrow transplant and sending lots of encouraging and positive thoughts your way. We think you are totally amazing!
With love, Philippa & Brett xxx