T+112: Home Base?

What a mixed week this has been so far. The last days Kay has been running a fever on and off and has been sick a number of times. She has oscillated between cheerful and sadistic, carelessly ripping into anyone who happened to wake her up or otherwise cross her sights. I have to say that yesterday, after a day of her mood, I was happy to head home. What a darling! I read an article yesterday about the CEO of British Airways taking his own food on flights because he feared that the aircrew were spitting in anything he was served onboard and I now understand why Kay is sticking to nasogastric feeding. But I exaggerate, she's not been nasty to the domestic staff, yet.

As I sit here she's started feeling very sick again, but that could be because she's watching "Holland's Got Talent", an oxymoron of a TV program if I ever came across one. She's also developed a rash on her arms which the doctor thinks is an allergic reaction to something, but isn't quite sure what. She's not had anything new today. But yeh, this is a typical day in the life of...

The interesting news is that there's a move afoot to shift Kay over to day care so that she can be based at home. The idea is to compress the current four days of treatment per week into two days, reducing the antiviral treatment from 3x per week to 2x per week (but the same total dose per week) and shifting the immunoglobine treatment to the same day as one of the antiviral treatments. The latter will end up being a fairly long day. But of course the advantage is that she'll get to sleep in her own bed.

The first step in the move should take place tomorrow, the idea being that she will go home mid-afternoon after the body of the antiviral treatment has been completed, this instead of Sunday morning. Then she will have to be back on Tuesday, but the idea is that if alll goes well she'll be able to go home again to return on Friday. The week after the boost is due to take place which will involve a few days in hospital and will allow us to evaluate if the new arrangements are suitable.

I have my concerns about this change, considering that as I write this Kay has just been sick again and that we generally just seem to proceed from one problem to the next. I'm also concerned that all of a sudden, after weeks of it being necessary to treat Kay 3x per week, this can now be brought back to twice. On the one hand this maybe because the acute BK virus symptoms have largely gone and that the CMV virus load is stable. But on the other hand I'm worried that the virus load is stable because of the current level of treatment and so fiddling with something that works just before the bone marrow boost doesn't seem such a good idea to me.

I guess that it will be a long evening. Even after throwing up, Kay is still feeling sick and there's a queue of medication that still needs to be dumped in her stomach. Here there's professional staff to do that, at home it's just us. Hmmmm...