Friday, 21 May 2010

T+28: Just because you go home doesn't mean the story ends


I start writing this by first letting out a huge sigh: this is not what I'd expected. Marion & Kay had been told to be back in Nijmegen for 9am, meaning a 6.30am start. I have only been exposed to the short hand version of the following story, for the full blown version I guess you'll have to wait for Marion to write her email and then stick it through Babelfish. But it goes something like this:

They arrived on time and were shown into Room 11, ie just where we have spent the last 5.5 weeks. Leonie, one of excellent nurses how has looked after us, hadn't received any instructions beyond performing a normal blood test. She knew nothing about a possible virus and/or fungus infection and the associated tests and lung scan that had to be performed. After waiting for a while, ie most of the morning, it dawned on Marion that something had gone wrong with the arrangements, where upon she started to kick up a fuss. The duty doctor was called, who didn't know anything. She consulted the oncologist who had given the orders for the tests and it turned out that the instructions for the tests had not been transferred from the night staff (it was that late by the time she had a chance to write them out) to the day staff.

Thus it was afternoon before the virus and fungus blood tests were started, meaning that it would be evenin before the results came in. Thus it would not be possible to do a lung scan today because the need to do the scan hung off the results of the fungus blood test, etc, etc. However, Kay had to stay until (at least) the fungus test was in.

The fungus test came in in the late afternoon and was negative, phew! Permission was then given for Kay to go home. We're still waiting for the results of the virus test, but that is seen as a lesser worry. But in theory, if this is positive we could still be summoned to return to Nijmegen tomorrow.

So, Kay and Marion are back home. I've taken my overnight bag out of my car but have not yet unpacked it because I'm beginning to get the feeling that unpacking is an waste of time. We'll see.

Now, on to more cheerful stuff, some photos from Wednesday and yesterday:

Home at last! Kicking a ball around garden. Is this the same 'patient' that struggled even to get out of bed for a shower in the afternoon?


Scoring a goal against Mama. Kay remains supremely competitive.


Mama just doesn't stand a chance.


Hockey Team drops by to say "Hello".


Spreading the news that she's home.


Yesterday: one day at home and already bored with the quarantine rules.


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