Wednesday 14 April 2010

Countdown T-8

Kay's rash seemed somewhat improved this morning. However a biopsy was taken to be prudent. The results will not be known until tomorrow, but the specialists have decided that the ATG treatment will take place tomorrow. The reasoning is that either the rash is Shingles and it's now under control (rash improved) or that it's not Shingles and is therefore not relevant. The result of the biopsy will only determine whether Kay is kept on the anti-viral drug or not.

Apart from that the day has been very quiet. Kay & I played some games this morning, the 4-in-a-row score is now 10-8 to me. Kay slept for 4 hours this afternoon. Marion took the chance to go home and bring another car load of stuff this way. Even so, for some reason it was a tiring day - the result of worring about tomorrow I suppose.

Kay's mental state is of some concern to Marion and I. She is incredibly bad tempered, rude, argumentative, uncooperative, etc etc. Obviously she is suffering from stress and worry, but the degree of aggression that she radiates is rather worrying. We have asked that she get to talk to the child psychologist as soon as possible, since it is clear that she needs some support that we are not able to give. But I suspect that this will take a back seat in the coming days since I expect that the ATG treatment will make her very sick for a few days.

I have the feeling that we're now on the eve of the really difficult days of the BMT. We'll see.

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