T+3: Bored (Fortunately)

Not much happening today. Kay was in good form, took part in school via the webchair this morning, had an hour doing fractions with Juff Jonja this afternoon. We left her on her own this morning for a while. Marion did some walking and I wanted a shower and change of clothes after a night on duty.

But during the couple of hours I was away Kay got a lot of visitors and became quite hassled because none of them introduced themselves or said what they were there for. So she asked the duty nurse to get the child psychologist for her. Later, when the psychologist turned up (I was back by then), she complained that everyone was bothering her and that she didn't know what to do about it.

The psychologist was pretty impressed that Kay had the presence of mind to ask for her and suggested that Kay make up some "room rules" and stick them on the door for everyone to read. The primary rules will be that everyone who comes in has to introduce themselves to Kay and explain what they have come to do. She discussed this and one or two other things with Kay and left Kay feeling much happier and more in control for her surroundings. I have to say that I was pretty impressed both with the professionalism of the psychologist and with how Kay handled herself.

Kay's platelet count was again very low today (17) in spite of the transfusion that she had. This means she runs the risk of bleeds should she hurt herself, etc. But because she seems otherwise quite well the doctors decided to skip another transfusion for today. Her red cell count was still quite reasonable, but her white cell count was on the floor, which is to be expected. The next blood test will be on Wednesday.

We have to hope that the remaining days and weeks are quite so boring. I suppose that they won't be, so I have being trying to enjoy the quiet moments.