Well, the weekend could not have been more different from the previous week. Kay has been active and busy most of the weekend. Yesterday her teacher, Esther, came to visit and offered to help Kay with some school work or let her take a regular assessment test. Kay decided to take the test so Esther took her into the kitchen and Kay did the test. But then she wanted to know the result, so Esther took her to school so she could mark the paper. At school she helped Kay sort out some school work that Kay can continue to do herself in the coming days. I think that they were at school about 90 minutes. When they came back it turned out that Kay had scored an 'A' for the test. Wow!
Unsurprisingly she was very tired yesterday evening, so today we decided that she would have to be a little bit quieter. She had a short sleep around lunchtime and another one around 5pm. But even so she has been active all day. There has been no sign of the very sick child that we have had for the last few weeks. This evening Kay had to head back to the hospital, she's due for 3x chemos and a bone marrow tomorrow and we wanted her stable in hospital before such a heavy day. When we woke her up this evening she was very anxious about having to have a line put into her portal again - this is what triggered an epileptic attack last week. She was worried that the same thing would happen again. But we managed to convince her that the fact that she's been so active during the weekend is proof that the chance of having another attack is receeding.
Marion & Kay are now back in the hospital and settled for the night. Marion's PC has black screened during boot and I have no idea what the problem might be. So don't expect to get an email from her this evening.
I hope that what we have experienced this weekend is normality for a child having this treatment and that what has gone before has been abnormality. We'll see.
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Congratulations on your "A" for the test. Very brave of you to take the test at all! And isn't it great that your teacher came to visit and that she helps you with school work? Hear that you're going to have a tough day tomorrow. So though I am to late because you are back in the hospital already, I like to wish you strength and I will send you happy thoughts.
ReplyDeleteI will think of you tomorrow,
Viviane
A good tiding to start the week! I read the blogs at home and at work, and I'm happy reading this. Greetings from me and my colleagues here at Philips CL.
ReplyDeleteTon.
Kay - well done with your A for your test. You are being a extremely brave girl as well as a clever one and we are all following your progress. We hope that the various procedures will go as well as possible today. By the way - you look great in your bandanas.
ReplyDeleteWe are thinking about you and will look out for more news.
love from Glen, Guy and family and indeed friends who now all ask us 'how is Kay'. I think there is a lot of positive thinking coming your way. XXX
Dearest Kay,
ReplyDeleteWell, well... you really are a superstar aren't you?! Well done with your A grade on your test and it is lovely to hear that you had a better weekend at home. Good luck today and this week with the next round of chemo.
With love, Philippa & boys (yes... even the one in my tummy is a boy so I am definitely in the minority this end!) xxx