Kay came back home yesterday. She has only had a half dose of chemo this week and so is quite fit. But she's on dexa again and is a little grumpy, but not too bad. It turns out that next week she'll have a lot of chemo, so we'll enjoy the days until then.
Today Kay is an uncomfortable mixture of tired and bored, a feeling I know only too well. She wants to do something but she doesn't know what. I just took her for a walk round the garden and we ended up kicking a football around. We have a goal and Kay's likes shooting at it, so I was goalie. It was fun and she kept it up for 15 mins before her legs were too tired. She's now sat in front of the TV.
I have to say that she looks beautiful. Her cheeks are rosy and without hair she looks very elfin indeed. Medically she is doing very well, but of course we have to wait until next week to hear just how well she's doing. Looking at her now it is clear to me what trouble the itraconasol caused. Even though she's had vincristine this week, she has very little trouble with her tummy. She's even starting to eat reasonably, though still too little to sustain herself without the NG feeding.
A friend our ours who is a head pharmacist, Brit, checked out the subject of itraconasol toxicity and confirmed that Kay will make a full recovery from the effects. I gather that she will remain on an anti-epileptic drug for 6 months. Thanks, Brit!
So, things with Kay are quiet this week. Let's hope that they stay that way. No fevers!
Subscribe to:
Post Comments (Atom)
Hello the four of you,
ReplyDeleteGood to hear that you are back home Kay and that you are doing well! A week without much chemo will give you the opportunity to stabilize a bit and get some more strength. Spoken of opportunities, Rob and Marion perhaps this is the moment to go out one evening to have dinner just the two of you. Doesn't have to be fancy of far away, just somewhere they can reach you in case of... it will give the both of you the chance to talk about your own feelings. Don't forget yourself during this whole episode! The last few weeks were very anxious and stressful, not only for Kay but certainly for the both of you.
Kindly,
Viviane.
PS: I do not want to be rude or interfering in a private matter. But I found your writing yesterday very private and therefore took the liberty.
So please do not blame me for it comes from the heart.