Last Friday Kay spent a few hours at school in the morning. She found it quite tiring but very rewarding. The only issue is that she finds it difficult when things get busy or too many people are around her and of course all the kids wanted to talk to her.
During the weekend she has been fairly active, friends to play on Saturday and yesterday she was in the village watching the 'Sint' parade. Yesterday evening Marion took her back to Nijmegen for the start of the week 6 chemo cycle.
Today she has had a bone marrow sample taken under anasthetic and she has begun this week's chemo. We expect that she will remain in Nijmegen until Thursday, but we don't know for sure. The bone marrow sample will be used to determine the future course of her treatment and as such is extremely important. If the sample contains less than 10% cancer cells, then she will continue on a chemo-only protocol. More than this and she will almost certainly require a bone marrow transplant. At least, this is what we have been given to understand. So, it's a very important week.
In herself Kay seems to be doing very well. But the effects of dexamethasone are starting becoming apparent. Her face is rounding out, she is hungry for fatty foods and her temper is quite short. The extra weight is no problem, frankly after the weight loss of the last few weeks it's welcome. But we have to start watching out for the temper problem, it's a characteristic of people on dexa and last time dealing with dexa-Kay was like defusing a bomb with a very short fuse. Still, there are worse things.
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Dearest Kay,
ReplyDeleteSo good to hear that you had a good week and weekend at home. It must have been great to see your school friends again. Good luck this week with the bone marrow sample that they are taking. Fingers crossed for good results! The dexa medication sounds pretty tough going, but as always you seem to be handling it all brilliantly.
With love, Philippa & boys xxx
Hi Kay,
ReplyDeleteYour dad pointed me on your Blog. Although we don't know each other, I can imagine a little how you are struggling to fight this mean disease. I think you are a very fine girl and I hope you find the strength to keep on going. We put our thumbs up in the office for you. Toi Toi!!