The new line has been placed. A new feeding tube has also been placed directly through her stomach into her small intestine so that they don't need to feed her intravenously. This represents slightly less load on her liver. However the doctors felt that that this was enough stress for her system so the lung investigation has been postponed until tomorrow morning. She has since been returned to lying on her tummy and she's back to being stable.
Earlier I got the idea in my head that this is actually intensive care for us, that the goal is to keep Kay going long enough for Marion and I to catch up with reality. Not a pleasant thought. But this afternoon we got a very welcome visit from a family whose son has been through the same thing. A bone marrow transplant patient, he developed a lung problem and ended up in the same state as Kay, in the ic on ventilation, on dialysis. He was there for five weeks. He sat here this afternoon and was a source of wonder and inspiration to Marion and I. Living proof that Kay can survive this terrible situation.
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I am glad that you had the opportunity to meet him and that you can have some hope that Kay can pull through too. She is a tough little cookie that daughter of yours. We are willing her to turn the corner on this one
ReplyDeleteSharon x
That visit from the healthy boy is so heartening! I wish the same outcome for Kay and that is difficult time is just a necessary step in getting there.
ReplyDeleteWhat a heart-warming aside at a time of so much stress!
ReplyDeleteKay has proved already that she is an incredible little fighter. Never lose belief in her - the belief of so many people will help her with the fight.
Love and hugs
Linda and Em xx
How very, very, very nice of them to come and visit. There is nothing more welcome than a living proof of the fact that things CAN go well. It gives strength, it gives hope, it gives BELIEVE.
ReplyDeleteFor that is what you need... KEEP BELIEVING in Kays healing! SHE WILL MAKE IT, SHE WILL!!!
Viviane