Sunday 12 September 2010

Update

We had a meeting with the doctors earlier. Long meeting but short story. Kay is showing signs of (continuing) infection. The most likely alternative is one or more fungal infections. Treatment for fungal infections is being broadened. The next most likely alternative is bacterial infection, treatment for which is also being reintroduced. They have also been experimenting with the ventilation this afternoon and have reduced the rate of fluid extraction.

It looks like some or all of this has had an effect already, but the usual caveats apply. Her blood pressure has risen and the support medication is being reduced. Her breathing is a little better. But of course it will take longer before we can be certain of a positive improvement.

My biggest concern really is that Kay has been without an effective immune system for so long now that she's developed an entire potpourri of infections. The medic's thinking seems to be taking them in that direction. There is talk of not one, but potentially a variety of fungal and/or bacterial infections. The ultimate (and potentially only) cure for these things increasingly becomes Kay's own immune system. But of course, the more medication she gets, the more negative load there is on her own system and the harder it becomes for her to assist/take over the fight. Her immune system is showing a little bit of resiliance, her white cell count was 0.8 on Friday, 0.9 yesterday and 1.0 today. Tiny improvements, but more importantly no further drop.

3 comments:

  1. I am certain that the little vibes of positivity that you include in these blogs are transmitted direct to Kay - and will help her as she fights. Each tiny positive is good news.
    Like all your readers, we want more than anything to do something practical to help - but for now we send massive hugs, prayers and wishes from all the Hazelby family (you know you can shout-up if there is anything useful we can offer).
    Much love
    Linda & co xxx

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  2. Little steps but all in the right direction....

    Behind you all the way
    Sharon x

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  3. Again well said Linda. Shout Rob, let us know. We had that debate last night, is there anything that can lighten your load?

    I also think Vivians comment hit the nail, two steps forward back. But trending in the right direction.

    Kay, you amazing child, come back to us soon. I will come with you and Marion to Euro Disney ....

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