Our little fighter is still hanging in there. Lungs still very bad but not worse than yesterday morning. CRP infection indicator down a little to 366, for what it's worth. Staff are doing everything they can to optimize her treatment. Other systems working better, she's peeing a little more, her BP requires very little support, feeding is going a little better. But yeh, it's all worth nothing without a working set of lungs.
Lauren arrived late last night and has been with Kay. Nattie will arrive shortly, but probably won't want to see Kay if/until the very last.
We made the night but this is equally going to be a long day. Marion & I got some chemically induced sleep, so we're not worse than when we went to bed.
Guess that should be the theme of this entry, "Not worse". But then worse isn't possible without a complete disaster.
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We will fight with Kay and you all trough the day. Hopefully to win the battle.
ReplyDeleteViviane
Breath Kay, come on darling, I'm shouting it at you. Do not give in. Thinking of you every second.
ReplyDeleteRob
ReplyDeleteCan't image what you are all going through but thank you for sharing it with us.
Our thoughts are with you.
Alistair, Sue and Emma
WOW! Amazing child.
ReplyDeleteSo much love, so much concern, so much support from the people who can't be with you, but are there in spirit... you're in our minds at all times
Hang in there all of you - spent the night praying for a miracle - same again today.
With love
Linda & Em xx
Ik heb een kaarsje voor jullie branden en hoop en bidt voor een goede afloop.
ReplyDeleteStill In bed here in North Carolina and as I've done every morning this week, I grab my iPad from the nightstand to check on Kay. I feel such relief this morning that she's still fighting. I picture her dance videos from shortly after the transplant and hope that spirit is still alive in her.
ReplyDeleteThinking of you all from across the pond.